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The ME / CFS Stichting Nederland is committed to strengthening the position of patients with ME / CFS (chronic fatigue syndrome). We focus on ALL ME / CFS patients. Regardless of the severity of their ...
regional / living room groups volunteers
Organisation role · 0–2 hrs/Week
From home
AssistanceAccompanyingDutchCoordinationTrusteeshipHostingAdvice & MentoringSocial contactBefriendingCare work
Community & familyPeople with disabilitiesWellbeing
This volunteering opportunity is expired You can find other volunteering opportunities here.
ME/CVS Stichting Nederland
#37007
Scan me or visit en.vcutrecht.nl/o/MECVS-Stichting-Nederland2/opportunities/vrijwilligers-regiohuiskamergroepen/37007 to join
Scan me or visit en.vcutrecht.nl/o/MECVS-Stichting-Nederland2/opportunities/vrijwilligers-regiohuiskamergroepen/37007 to join
Contact person
Kinga GomoluchAsk Kinga a question
Summary
You organize periodically (1-4 times a year) meetings of our members somewhere in Utrecht or at your home (contact with fellow sufferers).Detailed description
Do you enjoy being a hostess, meeting people, being meaningful? And do you enjoy organizing things for others? Then we are looking for you!
Many people with ME / CFS have a need to interact with fellow sufferers. Preferably in their region. They can learn from each other and come out of their isolation together. Often real lasting friendships develop there.
We have so-called fellow sufferers lists of people who would like to come into contact with other ME / CFS patients.
You organize such a meeting in your neighborhood (in a church, a community center or simply at your home) a few times a year. That doesn't have to be anything special, usually just a cup of coffee and a slice of cake and shouldn't take more than two hours.
But its impact is huge. People enjoy and always look forward to it. And it is also nice for yourself because you see that you help fellow human beings and give companionship.
What volunteers need
🗣️ Native language skills
What we will provide to volunteers
💸 Reimbursement of costs🤝 Extra supportThis volunteering opportunity is expired You can find other volunteering opportunities here.
About ME/CVS Stichting Nederland
The ME / CFS Stichting Nederland is committed to strengthening the position of patients with ME / CFS (chronic fatigue syndrome). We focus on ALL ME / CFS patients. Regardless of the severity of their illness, their origin, gender or age. Young people with ME / CFS receive extra attention from us. They still have a life ahead of them and deserve extra help.
We do this by:
- Aiming for broad recognition and recognition of ME / CFS as a very serious disabling physical disease
- offering (a platform for) contact with fellow sufferers
- Contribute with progress towards the cure of ME / CFS
- as a knowledge center for ME / CFS to contribute to the sharing of information, knowledge and experience
- contribute from our network to scientific research aimed at the cure of ME / CFS.
For this we focus on ME / CFS patients, their family members and relatives, healthcare professionals and policymakers. We continuously work to achieve our goals with dedication, independence, integrity and an open attitude. We have an inclusive, positive basic attitude. We look at what is still possible and what can be improved. We are optimistic and enjoy our work. Our bottle is always half full and never half empty.
We work nationally, regionally and locally. Also in the city of Utrecht.
We want to be in the city of Utrecht
- start a peer support group for patients with ME / CFS and
- involve young people and students in our work
- assemble a group of students and (young) scientifically educated and interested people who are willing to follow international medical scientific developments and research on ME / CFS and related topics and to review, assess and share scientific articles for us in "ordinary people- language ".
We do this by:
- Aiming for broad recognition and recognition of ME / CFS as a very serious disabling physical disease
- offering (a platform for) contact with fellow sufferers
- Contribute with progress towards the cure of ME / CFS
- as a knowledge center for ME / CFS to contribute to the sharing of information, knowledge and experience
- contribute from our network to scientific research aimed at the cure of ME / CFS.
For this we focus on ME / CFS patients, their family members and relatives, healthcare professionals and policymakers. We continuously work to achieve our goals with dedication, independence, integrity and an open attitude. We have an inclusive, positive basic attitude. We look at what is still possible and what can be improved. We are optimistic and enjoy our work. Our bottle is always half full and never half empty.
We work nationally, regionally and locally. Also in the city of Utrecht.
We want to be in the city of Utrecht
- start a peer support group for patients with ME / CFS and
- involve young people and students in our work
- assemble a group of students and (young) scientifically educated and interested people who are willing to follow international medical scientific developments and research on ME / CFS and related topics and to review, assess and share scientific articles for us in "ordinary people- language ".
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